Dancing in the Kitchen

Hey guys and gals!

Pie here. Last semester I wrote a paper about the “storm in my life” for my theology course. I bet you can imagine what I wrote about! But if you are new here, or do not know, I talk about my battle with Postural Orthostatic Tachycardia Syndrome. I have grown up in a family that is religious. But please know that I am not trying to shove religion down anyones throats. This is just my own story and I wanted to share it with you. I wrote it for my theology class, that’s the reason for all of random quotes XD they were a part of our assignment. Hope you enjoy it, I really liked this assignment ❤

Dancing in the Kitchen

Robert Ellsberg once wrote, “A peacemaker prays. Prayer is the beginning and the end, the source and the fruit, the core and the content, the basis and the goal of all peacemaking (Ellsberg, 153).” I believe that we need to have blind faith through prayer. The problem is that we live in a day in age that people rely so heavily upon themselves, while forgetting to look towards God. We focus on what we believe measures our self worth such as, the worldly possessions that we value, but those will not last. Things such as money, status, and health are temporary and can be easily lost. We need to let God work though us, and help us to let go of our desperate need to control our lives. It amazes me how little control we actually have in this world. When I lost my control I was led to God. My spirituality and prayers were the core and foundation that protected me from the tribulations in my life. They were there for me in the beginning and I can be sure they will be there until the end. In the darkest time in my life I was immersed in a sea of prayers, those of my own, my family, friends, and strangers as well. One always knows they are lost in a storm when strangers are praying for their safety back to shore. I am desperately thankful that the strangers, friends, and family in my life that never gave up on me because, without knowing it, I needed them.

In the fall of 2004 I was a vivacious ten-year old with a big personality and bleached blonde hair. I had just transferred to a Christian elementary school, which scared me at first, but soon I came to realize how happy the school made me. This school taught me how to actively live through my Christian faith on a day-to-day basis. Which is a lesson I have carried with me for my entire life. Dauntingly, I had no way of knowing that I was a few months away from the storm of my life. My storm started, as many do, with a few raindrops. My body’s immune system was struggling to fight off viruses and I found myself sick every couple of weeks. With every stomach bug, flu, or cold, my body would not fully heal and soon I felt as though I was sick every day. My once blonde hair changed to brown and I felt like I was slowly losing my identity. I did not know who I was after everything I had know was stripped from my life. I was not sick everyday with a cold per se, but suddenly my well of energy had run dry. I spent the majority of my days lying on the couch, watching television. By the time I started fifth grade the energetic ten year old I had once been, had deserted me, and I was left with a new person who I did not recognize, but at the same time, was all I had left.

My memories from my eleventh year are blurred. I remember taking a nap every day, going to school three times a week (if it were a good week), listening to books on tape, and last but not least, going to doctor’s offices. In the past ten years my veins have run dry from every vile taken and my throat closed to every pill swallowed. The blood results were without fail perfect, and on paper I was a healthy little girl. I was so desperate for a diagnosis that I would pray for the test results to come back positive. My sickness was grueling for me, but much harder on my family. My parents worked tirelessly to discover a cure. I went to the finest hospitals and spoke with the greatest doctors in the country and finally, I was diagnosed with chronic fatigue. Fatigue means tired and chronic translates to all of the time. It was not a true diagnosis, just a title for the unknown. Soon doctors would turn me away because they too, could not see the cause of my storm. I was not diagnosed with Postural Orthostatic Tachycardia Syndrome until I was a freshman in highschool.

Looking back, my Mom ensured I never fell into depression. She made sure every week I would have something small to look forward to. We watched comedies, made delicious food, did science experiments with my neighbors, read funny books, and most importantly we laughed. My childhood was never deprived of laughter and that was the best medicine. I think that is what God wants for me, a life of laughter and letting go of control. On my hardest days my Mom would be in the kitchen and she would pull me in and dance with me. I would rest my weary body against hers and she would sing to me and spin me around. She taught me to see happiness in my suffering and hope in my recovery. My life storm relates back to my theology class because they both have taught me how to live life to the fullest and how to remain thankful. My mom gave me peace just like when Jesus bid farewell to his beloved apostles he said, “Peace I leave to you, my own peace I give to you; a peace the world cannot give, this is my gift to you (Ellsberg).” It is challenging to find peace within a storm but I have found, if one looks long enough, it is possible.

Dancing with my Mom in the kitchen was more powerful than any diagnosis. Laughter brought me peace and simultaneously destroyed my self-pity. I wanted to choose a path that did not lead to a loss of hope. My life’s peace remained fairly strong throughout the lifespan of my storm but I vividly recall three moments where my hope was shaken. Each time was almost identical to the other where I stood in my sister and my bedroom, sobbing and begging God to heal me. I asked him why this was happening to my family and why I had to watch their hearts be broken. I felt guilty that my pain had become their pain, and my burden was theirs to carry. It is much easier to feel pain inflicted upon yourself, than to see your own pain reflected through the eyes of the people you love. Despite my frustration, I always felt God’s innate calming presence in our conversations, which is something Teasedale would describe as the “quieting of emotions”(Teasdale, 24). My struggle left me with two choices, to either turn my back on God, or to walk with him.

My illness instilled a blind faith in my heart. I truly believe that suffering is one of life’s greatest teachers. My path relates to those in Modern Spiritual Masters, because my storm led me to God just like, Mother Teresa, Thomas Merton, and Henri Nouwen. Mother Teresa found her blind faith through prayer and she said that, “Work cannot substitute prayer. Nevertheless, we can learn to make work a prayer…by doing our work with Jesus and for Jesus. (Ellsberg, 27).” Mother Teresa has taught me that I feel closest to God, not when I am helping myself, but when I am focusing on others. For the duration of my illness my family kept me strong and humble and I was reminded that many children were suffering more greatly that I could imagine.

I lived with this severe illness well into my high school years and looking back I cannot imagine the person I would be without the conflicts I have faced. I can now be a support system to the people around me and finally start thanking God for all of the angels he has sprinkled throughout my life. A wise woman named Wangari Maathai once described, a hummingbird putting out a fire with one drop of water at a time, she explained that one drop may seem insignificant, but the small bird is just doing the best it can. When we are put up against trials such as these, it is our duty to try and put out the fire whether it is our friend’s demon or our own. We can alleviate their pain by just being there to comfort them in their time of need. I cannot express in full the importance our actions have on people. Without my Mother, Father, family, friends, and even, strangers I would never be where I am today. (Maatihai)

The best words I can use to describe what my storm has taught me are not my own, they come from Robert Ellsberg, and through my class readings his words ring in my ears and overpower all of the other voices. I want to live life through this phrase, “Make sure that you let God’s grace work in your souls by accepting whatever he gives you, and giving him whatever he takes from you. True holiness consists in doing God’s will with a smile (Ellsberg, 33)”. Life may have given me an illness that seemed unbearable at times but I am proud of how I handled it. If I have learned anything from my life, it is to not take things for granted like I once, did in years past. The teachings of this class have shown me that kindness of a neighbor can go much further than self pity, and we become who we are meant to be by building each other up. Gandhi told us that our values become our destiny; therefore, we can never be who we are meant to be, without helping our neighbors become who they are destined to be.

Thanks for reading! Have a wonderful rest of your day ❤

Pie

What Am I Going To Do?

Hi guys, it is Pie! I wrote this post a couple years ago back when I was in high school. I stumbled across this little gem while I was looking through some blog posts that I never finished. Hope you enjoy it ❤

 

You know that feeling? That sick indescribable feeling when your heart sinks into your stomach and a thought flashes through your mind, “What am I going to do?” It happens a lot doesn’t it, especially on a truly awful day. It normally happens when we are at a very low point in our life, year, week, or even hour. It happens to me when I am fighting off a virus or a virus has completely taken over me. I’ve been sick twice in the past week and a half. I was really stressed about this school year because I had five classes that were extremely difficult. I missed the first three days of school because I was on vacation. Therefore, I had a lot of makeup homework. To say the least Pie was SUPER stressed out! Five hard classes and enough homework to sink a ship. That Thursday, my horse died. It was one of the worst experiences I have gone through. I had to complete my homework while doing some hard core crying. Naturally I had a test the next day. I got a cold that weekend! Even through all of this I still had an awesome weekend because my loving….my amazing….and sweet friends threw me a surprise birthday party! After that weekend I told myself

“I can’t do this. I can’t take all of these hard classes. What if I get sick and miss school? I will never catch up! I can’t even handle missing three days! I normally miss a lot more than that!!!!!”

I talked to my Mom and Teddy and they agreed with my that I needed to drop Spanish III. Spanish is the only class I am taking that I technically am not required to take. I dropped that class like a hot potato. I traded it in for a study hall. Dropping that class made all of the difference! I still have a decent amount homework but I’m not drowning in it.

With POTS I have learned what I can manage and what I have to give up. It’s a hard lesson but one that is needed to recover. If you put too much on your shoulders you will crash. I could see it before my eyes this life being unveiled to me, taking five difficult classes, taking the SATs, and applying to colleges I was going to crash who knows when! But it would surely happen. Would it be worth it? No. I don’t think it would be.

Trust me. In the long run, it’s better to put your health first. It’s not worth getting sicker. Train your mind to weed out what you can and clearly can’t do. I never plan too many things for one weekend because if I do that then I will be jeopardizing my ability to go to school the following week. If you have POTS (or any chronic illness) I feel like it’s natural to start realizing what you can do. It’s more of a HA yeah right I can’t do all of that! Crazy talk is coming out of your mouth right now! (like my reference to Legend of Korra?) ….(do you watch Legend of Korra?)…..(yes, Pie is talking about a nickelodeon show)….(Please, don’t judge me 🙂 )

I’ve been sick a lot in the past few weeks. Three times to be exact. That’s a lot of crappy Pie days. It’s scary because sometimes I question if I am coming down with a virus or if my POTS is getting worse. It’s scary and I hate the feeling of the unknown. But, freaking myself out also isn’t going to fix anything. When you are sick try to give your poor sickly little self a break. It’s really not your fault. Don’t ever EVER think this is your fault. It has absolutely nothing to do with you or me. We were “lucky” or chosen upon from a random force. WOOHOO! We won the raffle to get some supermegafoxyawesomehot chronic illness. Next time I am asking for a super power in my side effects. Because mine are clearly lacking superpowerness. My friends would probably say if I had a superpower it would be napping. I am an excellent napper. I can nap anywhere, any time. I’m not sure if this is a curse or a blessing because napping isn’t really good for us POTSters. I try not to nap often. I only nap when I am sick or when I am feeling well I will nap once every couple of weeks.

I guess I am trying to say just hang in there. I’ve used this analogy before but sometimes I’ve felt that my body is like a plane with a faulty engine and I am a passenger inside. Sometimes the plane flies smoothly but others I am really frightened and feel out of control. I have a  body with bipolar syndromes! One day I feel great the next I have the flu. I’m not bipolar though. That is not one of the syndrome baseball cards I have collected.

My sister and my family light up my bad days. Find things that fill your sad heart with light. It may not seem like much, a silly video sent from Teddy or a funny story my mom tells me but they make my hard days memorable for a good reason. It gives me a reason to laugh and be thankful. Those little things can make a bad situation tolerable. I hate the feeling of what am I going to do. I hate it. Don’t you? It makes me feel miserable! You feel isolated in a puddle of worry and sickness. This sickness can make you feel self centered. It’s not like we have a choice. We have to over analyze normal situations to make sure we are well enough to do them. Anything from working out to going to the movies with friends. Were not self centered our body is just an attention hog.

The next time you ask yourself what you are going to do and how will you manage another day take a deep breath in. It is all going to be okay. I know life can be extremely hard and frustrating but those little things that make you smile are worth holding on to. Our lives can change in an instant so when you are feeling terrible always hold on to the hope that you might feel better in an hour or a day. Try not to focus on the opposite….like in an instant you could feel terrible.

“Somedays aren’t yours at all,
They come and go
As if they’re someone else’s days
They come and leave you behind someone else’s face
And it’s harsher than yours
And colder than yours”

This song randomly popped into my head. Somedays by Regina Spektor. It fits though. Our bodies are not our own, and we are reminded on a daily basis that we don’t have full control over ours. Our souls have a purpose though. A purpose that was planted by God and we have been carrying in our bodies all of our life. It is the one part of you that makes you different. It is Teddy’s love for writing and my love of painting. It is my Mother’s love of helping and consoling others and my Father’s love for healing people. It is my bird’s love for singing and my cat’s love for eating. When you read my last few sentences I am sure something popped into your mind. That one thing that calms your heart. That one thing that tells you that everything is going to be okay. Never forget the part of you that is so incredibly unique. It is there for a reason. Just like you. It is just hides in the shadows of your bad days. But never disappears completely.

 

Love,

Little Ol’ Pie

Catching Colds

Hey hey my fellow friends! Today I am sick in bed with a cold and I was just thinking….it has been a while hasn’t it? So I wanted to touch base and say a proper hello! I am a Sophomore in college now (WOW PIE YOU ARE OLD) and I am a graphic design major. I am learning how to make art just with letters but let me tell you, that is no easy feat. My typography teacher(fancy name for art with different types of fonts and letters and words and stuff) well my teacher is super strict! Who knew there were so many rules when it comes to making graphic designs and posters. Let me tell you I am learning a lot but also trying to figure out how to make ugly words pretty.

My health has been really good lately, minus this week….because of my cold (hence the title). I had a pretty difficult semester last year, I had a crazy roommate. But now I am out! I have a new amazing roommate and I am incredibly happy. I am a happy happy little pie. I sometimes get sick when I pile too many things up in my life! Which is why I am sick currently.

This is my personal warning to you…oh wonderful fellow pots peeps, TAKE CARE OF YOUR BODY. Simplifying is not a bad thing, it is actually a very good thing because It allows you to build up. Baby steps are what keep you and I healthy. Your body will always tell you when it is ready to take on more, but it may get angry if you take on too many things! Then you will have to cancel everything, and you will be sad and come back to me. As much as I love the idea of you wanting to read Teddy and my blog I would rather you be a happy reader instead of a sad reader.

Some random spammer sent a message to Teddy and I with a generic message saying that our blog has a lot of potential and blah blah blah __________ insert  vague comment here and they said we should be more popular. Which I totally agree but I also thought it was funny since the site it came from was the site of a robot! EWWW.

Have you ever seen Jimmy Fallons EW videos? If you haven’t please change that!

Teddy, my momma, my boyfriend, my roommate, and I all quote these videos non-stop. I can’t go a day without saying the word “EW” in a nasally tone just like Jimmy. So kick back, eat some salty popcorn, and watch EW video after EW video. You will not be sorry! But if you are sorry then I for one am not sorry! Because it is my life goal to show as many people as possible the wonders of EW.

Sorry this post is so random, I just suddenly decided I was too sick to go to my club tennis’ practice but not too sick to write. So my dear readers! I hope you enjoyed this sudden, random, and picture-less post! Until next time!

LOVE,

pie

Change of Season

 

sprouts sprouting

(This is a post I wrote over a year ago, in April of 2013. The information is still relevant)

Hello my dear Reader!

I’m sorry for the silence. I went back to Mayo Clinic… and there have been some changes. There were a lot of funny moments, most of which led up to the discovery that I have hyperadrenergic POTS

Which could be a good thing, because I looked in the mirror the other day and noticed a vague resemblance to a Teddy Graham.

teddy grahamWell isn’t that just disgustingly adorable.

I could just eat you up.

But I can’t. Because there is gluten inside of you.

I actually had something really hilarious happen when getting my MRI. They gave me something horrible to drink with lots of glucose in it, and just as they tell me to hold my breath and hold still to take the picture I got the hiccups!!

Getting-rid-of-hiccups arthur

 

Lets just say it wasn’t the most opportune timing.

This was about a month ago now, but I’ve been quiet since it’s been a lot to handle. A bunch of my medicines got changed. Well, actually all but two. Plus I’m now supposed to exercise 40 minutes of cardio using my legs and then work on my core and upper body. I could manage that. What drove me nuts was the fact that my pillow had to be up 6 inches and I had to go gluten free for a month.

the scream painting

 

Yeah. “The Scream” by Edvard Much has nothing on my horror. Just to clarify, I like to bake. A great deal. I enjoy making dinners, but confectionary delights are my joy. And wheat is a crucial part of that airy, crumbly, delicious process.

Oh, I tried. Don’t get me wrong. I tried. I bought all the right gluten free flours from Bob’s Red Mill. I ate spaghetti squash when the cravings got bad. I even tried to bake. A few of Pie’s descriptions for my baked goods were:
“This tastes like Hobbit feet”

hobbit-feet1

“What are you feeding me?! A 100 year old potato that’s still in the ground??”

Needless to say, she was not impressed. You have to be on a pretty intense learning curve and the mistakes are… inedible. For those of you who have sadistic doctors, this is a list of websites my gluten free friends gave me.

http://www.glutenfreecookingschool.com/archives/gluten-free-soy-free-all-purpose-flour-mix/ (if soy isn’t an issue, you can sub sorghum for soy since it’s easier to find)
http://glutenfreegoddess.blogspot.com/2008/02/best-vegan-baked-mac-cheese.html (glutenfreegoddess is a great blog, so many different options and they’re usually delish)
http://www.landolakes.com/recipe/1470/chewy-chocolate-chip-cookies-gluten-free-recipe (this one, if I remember right came out rather well, def the best of my cookie tries at normal cookie consistency)
http://www.cookingquinoa.net/ (quinoa blog with awesome recipes)
http://www.celiac.com/articles/21679/1/Pumpkin-Chocolate-Chip-Cookies-Gluten-Free/Page1.html (this is a good website if you’re gluten free, because celiacs can’t fudge or they’re in serious trouble, so it’s a good site to keep on track)
http://glutenfreehomemaker.com/2010/01/gluten-free-snickerdoodles-perfect/ (I think these came out the best of all my cookies, except maybe the pumpkin ones but how can you beat pumpkin?)
My favorite bread mix was by Pamela. It’s a brand thats pretty common, you should be able to find it at Trader Joes, Sprouts, or some other natural food store. Don’t do Bob’s Red Mill mix. That’s what prompted the 100 year old potato remark. Also, buy rice or almond crackers. I had no idea how frequently I reached for crackers until my entire pantry was off limits. The only flour I ended up liking was ground almond flour. It’s sweet and nutty without being overwhelming. Also, it manages to cut some of the acidic taste in the other flours. Stay away from pure coconut flour unless combined with something else. It makes the mixture SUPER chalky and grainy. Granted, I may have just been using it wrong. Anyways, if you have to go on this for any reason, good luck and God bless you. This was my own personal 9th level of hell. I was cranky and lethargic ALL MONTH LONG. So, whoever says that going gluten free makes you energetic and lose weight is someone I hope I never meet. They made me angry.
cute angry kid
Granted, the whole having to sleep with my head up super high might have contributed to the sleepiness. Nah. I’ll just blame the lack of gluten.
awkwardly sleeping cat
I think the whole thing would have been easier if I hadn’t just started eating things I liked again. Milk, chocolate, fiber, anything besides rice had been gone for a few months. I don’t know. Sometimes it just seems in POTS that as soon as something heals up it has to go berserk again. Pie once described POTS as “A day on repeat that got lost in translation” and it’s pretty true. It’s hard wanting to know the meaning about why you don’t feel well that day. It’s also hard knowing that just because you’re tired today doesn’t mean you’ll feel better tomorrow. Even if you sleep well, take all of your meds, and don’t pull the cats tail. There’s no such thing as karma in a POTS life.
So who else is diagnosed with not only POTS, but a super-special rare kind of POTS? If so, tell me about it! Honestly, my version explains some things, like the anxiety that happens when my adrenaline just leaks all over the place for no good reason. I’d love to hear from other exotically diagnosed individuals, but until then,
Be well!
Teddy

Guess Who’s Back?

My dear Friends! I hope you have not forgotten about little ol’ Pie because I most certainly have not forgotten about you! I have been MIA for a good hunk of time and that needs to change! This last year was my freshman year of college so now I return to you are a wise, mature, worldly, blah, blah, blah, blah, just kidding XD I am still me! I just have one year’s worth of new experiences to add to my list. It is summer time and I was randomly thinking about Teddy and my blog and it hit me that I hadn’t checked up on you all in quite some time! I was wondering if you have any questions in particular? Do you have any POTS related questions? Or college? Or love? Or staying positive? Or exercise related questions? ANYTHING you need some advice on! I don’t care if it is about what shirt to wear today or what movie to see. Teddy and I love helping out (Granted, I am not sure how helpful it is if I help pick out a movie for you….but I am more than willing!). We want this blog to relate and pertain to your life! We want to be able to help you in any way we can. We live with POTS and have individually lived with many different stages of this illness and we want to help you in whatever stage you are at 🙂 We send our love and keep us posted on what you want to see in the future!

Much love,

Pie

Fashion Gurus

Style the missespots

Hello my fashionable friends! Pie here! I thought it would be a splendid idea to share with you one of the things that has been making me a happy pie! A couple months ago I discovered fashion gurus on youtube. What is a fashion guru? I didn’t know either! Basically it is when someone dedicates their youtube account solely to fashion, makeup,tutorials, and such. Their videos range from make-up tutorials to do it yourself tutorials to fashion hauls. Fashion hauls are my favorite because I am not obsessed with makeup at this point in my life. This might change but for now I am really enjoying the jewelry and clothing. As you may or may not know…I make jewelry! I love seeing different types of jewelry without having to go to the mall. And like a lot of girls I like cute clothes. It is nice knowing what stores have what and learning about the latest fashion trends. I wanted to share with you my newest findings.

I only know a few people with POTS but collectively we all find that we need some sort of distraction to numb our brains. Things like video games, the interweb and television. I watch these videos when I am taking a break. Shall we start??

michelle-phan-45

First! Michelle Phan

http://www.youtube.com/user/MichellePhan?feature=watch

here is your linkage! She is one of the most well known of the fashion gurus I am going to introduce you to. Her knowledge of makeup and style is amazing. On her channel she shows her viewers how to achieve impressive costume makeup and also so many cute little beauty tricks and tips. She even has music videos!  Out of all of the people I am showing you today Michelle knows the most about beauty.  I totally recommend her! She even has the right voice. For me personally I can’t listen to youtubers that have irritating voices! They drive me crazy…as mean as that sounds. Michelle’s voice is calm, cool, and collected. She makes makeup seem easy and fun. It is her canvas! I love it! Here is a little video to get started!

arose186

Second! ARose186!

Arden is completely hilarious! She is a spunky, stylish, wacky high schooler who loves fashion. Her blog includes everything! Thrifting, make-up tutorials, favorite products, clothing hauls (Which is just showing their newest clothing finds), DIY’s, outfit of the days, and much much more! I will admit sometimes I don’t know how she can pull of the crazy clothes she buys! But she manages!  She will make you laugh! I love her energy! She has hundreds of videos! Her channel gives you the opportunity to pick and chose what fits your taste. Here is a little introductory video! Who else could better explain Arden than..Arden?

Clothesencounters

Third! Clothesencounters

http://www.youtube.com/user/clothesencounters

Jen’s style is extremely unique! She is one cool cat. A lot of her wardrobe consists of thrift store outfits and she rocks them. She and ARose186 both love THRIFTING and are very successful in their findings. She understands how to make old clothes stylish and work for you.  I don’t know how to explain this but Jen is the kind of girl you want as a friend. She has this easiness about her personality and an inspiring outlook on life. She is fashion forward and like the other two ladies she also has GREAT VIDEOS!  Here is a little push to get you started

Michele

Fourth! Michele1218

http://www.youtube.com/user/michele1218

Michele is the person who got me hooked on beauty videos! She is not to be mistaken for Michelle Phan (different person) I will admit I can’t relate as much to this Michele because a lot of her clothes are for the working woman. And me, being a high schooler who babysits….can’t relate. Doesn’t mean you won’t! I still really enjoy her site! She has the largest makeup collection I have ever seen….come to think of it she has a lot of large collections! My favorite parts about her channel are her jewelry and her clothing hauls. She is adorable! The things she buys on  are a little bit more on the pricey side. It is still really fun to watch! Surprise surprise here is a jewelry video by Ms. Michele herself!

essiebutton-1357511124_600

Fifth! EssieButton

http://www.youtube.com/user/essiebutton

Essie is funny 🙂 I like her so much. She is adorable! She is constantly acting like she doesn’t know what she is doing filming beauty videos but she is so good at it! I feel like I am talking to a friend while watching her videos. I just discovered her the other day. Her awkward nature is endearing. She lives in the UK but is from Canada. So she says aboot like a good Canadian! And also probably says sorry as sohrry (My friend asked me if I was canadian because of how I say sorry) Here is the first video I ever watched by Essie! Enjoy!

http://www.youtube.com/watch?v=Tyrd_Bt8pvE

mqdefault

I give you five new friends! To help you on your journey of fashion! I totally understand if you don’t get hooked on each one, I just hope that at least one will fit your style. Do not feel too overwhelmed with all of this linkage, that is why I stuck to only five links. Five completely different woman who make fashion even more fun! It is like having our very own team of project runway designers at our fingertips! YAY! You can still do things in your life to make yourself feel beautiful! I know some days it is hard to even leave the house. I wear P.J.s 90% of the time. Teddy lately has been prancing around in all sorts of adorable outfits, hairstyles, and makeups. It is really fun looking nice for school or an outing! A cute outfit or hairstyle will make you feel better! You might even get a boost of energy alongside a boost of confidence! Just because we have an invisible syndrome it doesn’t mean we have to feel invisible or unattractive. In actuality we look pretty normal so….we can still look supermegafoxyawesomehot even if we feel like CRAP! Take that world! Here we come. If you can’t take that step yet, order an adorable pair of pajamas and rock them around the house. The other day I found a pair of pajamas that were….wait for it….pink and covered in cats! I know how cool am I? They are awesome! I am a big fan of them! It’s all good when you are wearing a bucket load of cats on your pants. What could be better? Nutthing that’s what!

Thanks for reading my dear reader! You make Teddy and I so happy! It is the best feeling in the world to come home to a new comment or follower! Thanks for adding sunshine into our lives! Good luck tomorrow! Mondays can be hard! Have an amazing week 🙂

Lots of Love

Pie                       P.S. This is one of my own drawings/ paintings down below! I thought it fit the theme of this blog 🙂

Summer Vogue by NPB

Good Day!

zombie stop sign

Good day, dear Readers!

I have to cease making internet promises, I simply do not keep them. Today I woke up with smile on my face and going about whistling so I thought I’d say hello. The past few weeks have been a bit of a struggle. I’ve been going back and forth to the Mayo Clinic again to check up on my POTS as well as my poor belly. I had another tilt table test!  I was exceedingly tetchy about it. I also had to fast all day which turns me…. rather grumpy.

grumpy bear from carebears

They put me on two weeks of a new drug, which could reset my stomach. Unfortunately it so far has just given me days of pain. But, I’ve had some lovely diversions which I would like to share with you.

First of all, while I am a little bit of a slowpoke when it comes to internet technologies. I made a pinterest a few months ago, and have enjoyed it immensely. Initially, I thought it was some sort of website for hopeless romantics to look at bridal pictures. But after Pie got one, I kept sneaking on hers until I got one of my own. So, if you would like to look at pleasant pictures, here are the links to both of ours! You’ll get to know us a little better I think, which is the only real reason I put them up here.

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I’d love to see any of your pinterest boards if you would like to share them. I think observing what others find beautiful is quite informative. I’m not a huge fan of cheesy sayings, but if there’s one and Benedict Cumperbatch (Sherlock) is in the background I’ll blush and pin it. He’s rather handsome you see.

benedict cumperbatch portraid deviantart

I’ve hooked my whole family on Sherlock and am inordinately pleased about it. They’re all on Netflix instant play, so you really ought to watch it if you enjoy witty dialogue and a beautifully filmed adaptation of Sir Arthur Conan Doyle’s works. To be perfectly honest, I didn’t like the books. They often completely skipped the realm of reason and had Sherlock make leaps with no feasible intuition whatsover. “There’s a footprint! It must belong to a specific individual who has just escaped their Mormon compound in Utah who is on a trip to avenge their dead fiance!” I didn’t make that plot up. You can’t improve that sort of ridiculousness. Granted, “The Hound of the Baskervilles” was good, and I love the modern day adaptations where we can follow the actors line of reasoning.

SHERLOCK benedict cumperbatch

*Cough* Moving on.

My favorite thing about Pinterest is actually my board for recipes. I called in “Pornography for the Palate”, just for a bit of tongue in cheek/risque humor. Oh, tongue in cheek. That’s rather a good pun. Anyways, I use lots of online recipes along with my cookbooks and it’s murder to find them again. I’ve tried most of them on my page, but not all. My favorite is a recipe for “Outrageous Brownies” by the barefoot contessa. I messed about with it a bit and I am confident that they are truly the best brownies I could possibly concoct. I add a bit of cinnamon, a dash of almond extract, and cut the instant coffee mix down to one tablespoon for a truly perfect blend of flavors. My dad eats them for breakfast.

http://www.foodnetwork.com/recipes/ina-garten/outrageous-brownies-recipe2/index.html

They turn out a LOT better than the picture, but you do have to cool them and let them harden into more of a fudge consistency.

espresso brownies

I’ve read on quite a few POTS and other chronic illness blogs complaints about how difficult it is to cook. I couldn’t agree more. The only reason I put up with the absurd idea of standing is this innate need to see something accomplished in my day. I’m a doer. Reading a book counts as doing something, as does going to the supermarket. But often my mind is too foggy to read a book, and driving isn’t quite an option.  So I keep canisters of flours and sugars and a whole host of food that doesn’t go bad quickly. I didn’t start cooking until I was 17, and it was horrid. I would feel so ill afterwords I couldn’t do my daily exercise. Plus, Pie and mum are quite healthy eaters so they weren’t thrilled with the plethora of pastries. So I started making healthy dinners instead from scratch. I know I shouldn’t, but I do feel rather guilty when I can’t help out around the house. There were so many months I never left my desk and my bed wasn’t made. So cooking for me is a way to give back to my family. I can’t carry the 50 lb bags of grain for the horses anymore, and for a long time I couldn’t muck the horse stalls. That’s still an iffy task even now. Sometimes I have to put a chair with wheels in the middle of the kitchen and wheel about to the different bowls and stove. We all want to feel useful, even if we feel often ill. So if you can think of little things to make yourself feel useful, I would recommend it. Even if it’s just watering the houseplants, one at a time. I don’t mean to be insensitive if you’re stuck in bed. I’ve been there, you just have to take one day at a time. You learn your limits, and how to live within your energy means.

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I would like to introduce you to my new favorite thing of the week, The Lizzie Bennet Diaries. As you may know, I am a literary cliche. One of my favorite books of all time is Pride and Prejudice. I own several movie adaptations (Including the 6 hour one) and think Pride & Prejudice & Zombies is brilliant. So you won’t be terribly surprised that I gleefully stumbled on a vlog of a modern day Elizabeth Bennet narrating her story. The vlog is done by professional actors, and they make their characters so real it’s mind boggling. The characters chat (as themselves!) on Facebook, Pinterest, Twitter, etc. and have multiple video channels about their interactions. Lizzie Bennet is getting her masters in communications while living at home. Her mother is a southern belle obsessed with getting her daughters married off, each having a picket fence and 2.5 grandchildren. I love her best friend Charlotte (dressed above imitating Mr. Bennet), Lizzie is clever and judgemental (on the left dressed as her mother),

jane from the lizzie bennet diaries

her sister Jane beautiful and so sweet you feel like she’s your very best friend,

lydia from the lizzie bennet diaries

and Lydia (the combination of Kitty and Lydia) is a partygirl you roll your eyes at and simultaneously feel rather badly for. The story fits seamlessly into modern day, and each episode is only a few minutes long. It really is the ideal distraction when you can’t think and need a few minute (or a few hour) break in the day. Plus, they took the hapless Bingly and turned him into Bing Lee the medical student. Genius? I think so.

Not everyone likes it, and I must say I think they went a little too far in the wrong direction with their interpretation of Lizzie. But, all things considered, it is a two minutes well spent. Plus it has been featured in articles from the web and newspapers alike to great acclaim. I hope you enjoy it!

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Well, this post is the result of what happens when I sit down on a rainy day with a mug of hot chocolate. This has hardly been an informative or sensible post, but I do hope you enjoyed reading it. It’s nice to write about things that make me smile. I hope they make you smile too. What do you all do on a rainy day with the web at your fingertips and a hot beverage by your side? I hope you’re having as good a day as I am, and you will hear from me again soon!

Be Well,

Teddy

P.S. Pie is well, but she just started her varsity tennis season and is vying for captaincy  so she’s monstrously busy. But she’s quite well and says hello : )

girl reading a book