Teddy: Hello, I’m Teddy. We figured we would start this off with a few (boring) introductions just to give this blog an “official” kick off. I’m currently a college student at the University of _______ (insert awesome college here 🙂 ) I play tennis, I read incessantly, and I’m a team roper. Team roping is a rodeo event, I will explain it more in later posts.
Pie: Hello whoever is reading this I am Pie. Teddy’s little sister and I’m in high school. I love anything artsy-fartsy. I ride horses and I play tennis. I LOVE animals….I mean seriously LOVE THEM! As long as they are fuzzy….they don’t even have to be fuzzy I will still love them. And, (what a huge shock this will be) Teddy and I are vegetarians.
Teddy & Pie: And together cue the cheesy backround music we are the two Miss POTS!
Narrator: Now for some back round information, POTS (Postural Orthostatic Tachycardia Syndrome) is a pain in the rear. It generally strikes teenage girls, Pie got it when she was 10, Teddy got it when she was 16. It takes 2-5 years to heal, in theory, but can take some people a lot longer (Like Pie). It involves the autonomic nervous system (which regulates everything you don’t, so digestion, heart rate, hormones, and blood vessels) Incidentally, the latter is at the heart of their problems. Time for a biology lesson, blood vessels contract and expand when you sit up or lie down to get the blood to your heart and head more easily. When they expand, the vessels get bigger and the blood gets there in a sluggish manner. This is fine if you are lying down but when you stand up they need to contract so the blood can shoot up to your head and heart. See the problem yet? Well, if the autonomic nervous system is supposed to tell the blood vessels to contract, and its not working, you don’t get blood to your head. This makes your heart beat very fast, along with making you dizzy from lack of blood. This activity of almost fainting every time you stand is very tiring, so much so that many Miss POTS are diagnosed with chronic fatigue (which happened to Pie). Fortunately, at the ages of 15 and 17 they were diagnosed with POTS at the Mayo Clinic.
Teddy: Thank you, Jeeves. Now, all of this is but an overview. It means you feel sick every day. It’s scary to get diagnosed-
Pie: Because most doctors don’t know about it.
Teddy: cough right. But thats not our point. Being stuck sick at home all the time is boring. It’s the antithesis of fun.
Pie: That’s why we wanted to make a blog to talk about all of the things you can do to help make your POTS life easier and more enjoyable.
Teddy: There are plenty of other blogs who go into great detail of the struggles of POTS but we wanted to avoid that by using our natural optimism and charm : )
Pie: Not that we’re biassed of course. Oh, and if you are wondering if truly this is only one person writing a blog, and pretending to talk back in forth, TRUST me there are two of us. TWO people :] I promise, we are a little crazy but we try to avoid talking to ourselves over the internet.
Teddy: Since this is an introduction into our lives here are a few of our sym-
Teddy: …….. ? INGENIOUS!!
Teddy & Pie :
Lightheadedness, extreme fatigue, chest pain and discomfort, headaches, trembling, nausea,
muscle weakness, exercise intolerance, sleep disorders, chills, a weak immune system, overheating, depression
flushing, anxiety, brain fog, feverish, and love of cheese
Pie: That’s quite a list isn’t it?
Teddy: I know you’re all so jealous of our superiority.
Teddy & Pie: For the rest of our posts we will generally be sharing little things that make us happy throughout the day. This could be anything from a disney movie to a fantastic ice cream flavor. Because we’re going through the same things you are. Plus, everyone needs something to make them smile, even if they’re not sick.
TeDdY aNd pIe